A different shaped heart conversations about disability awareness podcast show image

A different shaped heart conversations about disability awareness

Win Charles

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Chocolate Cake Tried To Kill Me, But Insurance Might Finish The Job

Send us a text A single bite changed everything. What began as a straightforward recovery from hip and hamstring surgeries veered into aspiration pneumonia, a fight for air, and a crash course in medical advocacy. We walk you through the minute-by-minute reality: the warning signs that were missed, the plea for intubation that took too long to land, and the moment a routine anesthesia choice nearly collided with a known allergy. It’s unvarnished, emotional, and grounded in practical takeaways you can use if you or someone you love ever faces a similar crisis. We open up about how a caregiver’s voice can cut through chaos when yours won’t, why documenting allergies and repeating them matters, and how to handle transfers when hospitals are out of ICU beds. From the suction that cleared thick mucus to the sedation that fogged memory, we share the clinical steps alongside the human ones—staying calm, asking direct questions, and pushing for the right level of care. You’ll hear how our aides balanced fear and focus, how a medical liaison showed up before sunrise, and how community support steadied the ground under our feet. Then we turn to rehab reality: a heavy cast, energy budgeting, and building a plan that integrates physical therapy and occupational therapy when insurance only funds so much. We map out practical strategies for continuity of care, including choosing facilities that fit your needs, pacing progress to protect surgical gains, and preparing for the first days back home. If you’ve navigated disability, chronic illness, or complex post-op care, you’ll recognize the small victories and the stubborn barriers. If you haven’t, consider this a guide to speaking up, writing things down, and not apologizing for persistence. If this story resonates, follow the show, share it with a friend who’s advocating inside the system, and leave a review with your best tip for surviving hospital chaos. Your words help others breathe a little easier. Subscribe and stay with us as we work our way back home. Support the show

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