A different shaped heart conversations about disability awareness
Win Charles
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What Happens When You Advocate Louder Than Pain
Send us a text A birthday fall didn’t seem like a life-changer—until weeks later when pain roared, the knee wouldn’t bend, and the ER’s answers didn’t match what the body was screaming. We walk you through the messy middle: canceled surgery, a psoas impingement label that didn’t fit, a rehab stint that hurt more than it helped, and the relentless push to be heard. When an orthopedic visit finally led to a CT scan, the truth landed with force: the hip had been 50% out of the socket since June. From there, everything sharpened. We break down the three paths on the table—removing the femoral head, living with a barely functional leg, or committing to a total hip replacement—and why choosing the replacement is the only route back to stability, mobility, and independence. Because cerebral palsy adds muscle spasms that could threaten a new implant, we also share the cast-first plan designed to protect the hip during those crucial early weeks. Expect candid talk about pain management, realistic PT milestones, and a recovery arc that includes six weeks of healing and two weeks of focused rehab. This conversation is part battle map, part field notes for anyone navigating complex care: why X-rays can miss what a CT reveals, how to advocate when you’re dismissed, and what it takes to align surgeons, insurance, and timing around the holidays. We also look ahead—standing with a walker, getting back to school on a smarter schedule, and releasing a special episode of the birthday speech recorded on day one of the injury. If you’ve ever felt lost in the system or needed a blueprint to push for the right care, this story offers clarity, courage, and a plan. Listen, share with someone who needs a nudge to advocate, and if it resonates, subscribe and leave a review so more listeners can find their footing too. Everyday AI: Your daily guide to grown with Generative AICan't keep up with AI? We've got you. Everyday AI helps you keep up and get ahead.Listen on: Apple Podcasts Spotify Support the show
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