Proud Stutter
Maya Chupkov
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What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 1]
Bobby Glen shares his family's journey, from getting a diagnosis to participating in a clinical trial, and the importance of early screening and community support. This is Part 1 of a two-part series about raising a child with HNRNPH2, a rare disease that affects speech and motor skills. Part 2 will feature his wife, Nicole, who reflects on how this experience has shaped her work as a pediatrician and her views on patient advocacy and communication differences like stuttering. If you'd like to reach out to Bobby, you can email him at glennrw@gmail.com. Support this podcast at — https://redcircle.com/proud-stutter/exclusive-content Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy
![What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 2]](https://is1-ssl.mzstatic.com/image/thumb/Podcasts211/v4/52/df/47/52df47fa-eb5f-b332-ded2-b78c0cc0e74a/mza_48541616672487615.jpg/160x160bb.jpg)
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